S.1838 - DeOndra Dixon INCLUDE Project Act of 2025 (119th Congress)
Summary
S.1838, the DeOndra Dixon INCLUDE Project Act of 2025, aims to amend the Public Health Service Act. It authorizes the Secretary of Health and Human Services to establish a program focusing on research, training, and investigation related to Down syndrome. The bill emphasizes improving the health outcomes and quality of life for individuals with Down syndrome and their families.
Expected Effects
The bill would lead to increased federal funding and coordinated research efforts related to Down syndrome. This would likely result in advancements in understanding the condition, developing new treatments, and improving care. It also mandates biennial reports to Congress, ensuring oversight and accountability.
Potential Benefits
- Improved understanding of Down syndrome and related co-occurring conditions.
- Development of new treatments and therapies to enhance the quality of life for individuals with Down syndrome.
- Enhanced coordination among NIH institutes and other federal agencies in Down syndrome research.
- Increased participation of individuals with Down syndrome in clinical trials.
- Better data and evidence for clinical research and medical care.
Potential Disadvantages
- Potential for increased government spending, although the specific funding levels are not detailed in the bill.
- Possible duplication of existing research efforts if coordination is not effectively managed.
- The bill's success depends on the effective implementation by the Secretary of Health and Human Services and NIH.
- There may be a delay in realizing the benefits of the research, as scientific advancements take time.
- Potential for ethical concerns related to genetic research and data privacy, although the bill does not directly address these.
Constitutional Alignment
The bill aligns with the General Welfare Clause of the Constitution, which allows Congress to enact legislation that promotes the health and well-being of the population. Specifically, the bill authorizes research and programs aimed at improving the lives of individuals with Down syndrome, which falls under the umbrella of promoting the general welfare. The bill does not appear to infringe upon any specific constitutional rights or limitations.
Impact Assessment: Things You Care About ⓘ
This action has been evaluated across 19 key areas that matter to you. Scores range from 1 (highly disadvantageous) to 5 (highly beneficial).