H.R.1189 - National Plan for Epilepsy Act (119th Congress)
Summary
H.R.1189, the National Plan for Epilepsy Act, aims to establish a national plan to coordinate research, prevention, diagnosis, treatment, and cure of epilepsy. The bill mandates the Secretary of Health and Human Services to create and maintain an integrated national plan, coordinate research across federal agencies, and improve early diagnosis and care coordination. It also establishes an Advisory Council on Epilepsy Research, Care, and Services to advise the Secretary and Congress on related issues.
Expected Effects
The Act would lead to increased federal investment and coordination in epilepsy research and treatment. This includes the development of new treatments, improved care coordination, and enhanced data collection. The establishment of the Advisory Council ensures ongoing evaluation and recommendations for improving federal programs related to epilepsy.
Potential Benefits
- Improved coordination of epilepsy research across federal agencies.
- Enhanced early diagnosis and treatment of epilepsy.
- Development of safer and more effective treatments.
- Increased public awareness and reduced stigma associated with epilepsy.
- Better data collection and information systems for epilepsy surveillance.
Potential Disadvantages
- Potential for increased government spending, which could impact the federal budget.
- Possible bureaucratic inefficiencies in coordinating across multiple federal agencies.
- The sunset clause (effective until December 31, 2035) may limit long-term planning and investment.
- The effectiveness of the Advisory Council depends on the quality and diversity of its members.
- Data sharing provisions could raise privacy concerns if not properly managed.
Constitutional Alignment
The bill aligns with the Constitution's mandate to "promote the general Welfare" (Preamble). Specifically, it falls under the purview of Congress's power to legislate on matters related to public health and scientific research. The establishment of advisory councils and data sharing provisions are within the scope of necessary and proper actions to execute these powers (Article I, Section 8).
Impact Assessment: Things You Care About ⓘ
This action has been evaluated across 19 key areas that matter to you. Scores range from 1 (highly disadvantageous) to 5 (highly beneficial).