H.R.es253 - Expressing support for the designation of May 15, 2025, as Prader-Willi Syndrome Awareness Day to raise awareness of and promote research on the disorder. (119th Congress)
Summary
H.Res.253 expresses support for designating May 15, 2025, as "Prader-Willi Syndrome Awareness Day." The resolution aims to raise awareness of Prader-Willi Syndrome (PWS) and promote research on the disorder. It highlights the challenges faced by individuals with PWS and their families.
The resolution acknowledges the efforts of advocates and organizations dedicated to supporting those affected by PWS. It also recognizes the importance of early diagnosis, research, and the development of new treatments.
Ultimately, the resolution seeks to improve public awareness and understanding of PWS, encouraging support for affected individuals and their families.
Expected Effects
If passed, this resolution would formally recognize May 15, 2025, as Prader-Willi Syndrome Awareness Day. This designation would likely lead to increased public awareness campaigns and educational initiatives regarding PWS.
It could also encourage greater funding for research into the causes, treatments, and potential cures for the syndrome. The increased awareness may also lead to earlier diagnoses and better support for affected families.
However, the resolution itself does not allocate any specific funding or mandate any particular actions beyond the symbolic designation.
Potential Benefits
- Increased public awareness of Prader-Willi Syndrome.
- Encouragement of research and development of treatments for PWS.
- Improved support and resources for individuals with PWS and their families.
- Promotion of early diagnosis and intervention.
- Recognition of the efforts of advocates and organizations working on PWS.
Potential Disadvantages
- The resolution is largely symbolic and does not guarantee any concrete actions or funding.
- It may not directly address the challenges of accessing treatment and care for individuals with PWS.
- There is no direct economic benefit or job creation associated with this resolution.
- The resolution does not address the broader healthcare system issues that affect access to care for rare diseases.
- It may not reach individuals or communities who are not already aware of or involved in PWS advocacy.
Constitutional Alignment
This resolution appears to align with the general welfare clause of the US Constitution, as it aims to promote awareness and research for a rare genetic disorder. While the Constitution does not explicitly address awareness days, supporting research and public health initiatives falls within the implied powers of Congress to promote the general welfare of the population.
Amendment I, which protects freedom of speech, could be interpreted to support the resolution's aim to raise awareness about PWS. The resolution does not infringe upon any specific constitutional rights or freedoms.
Therefore, the resolution does not appear to contradict any specific provisions of the US Constitution.
Impact Assessment: Things You Care About ⓘ
This action has been evaluated across 19 key areas that matter to you. Scores range from 1 (highly disadvantageous) to 5 (highly beneficial).