S.Res.104 - Designating February 27, 2025, as Rare Disease Day. (119th Congress)
Summary
Senate Resolution 104 designates February 27, 2025, as "Rare Disease Day." The resolution aims to raise awareness about rare diseases, encourage early diagnosis, and support research for effective treatments and cures. It acknowledges the significant number of Americans affected by rare diseases and the challenges they face.
Expected Effects
The resolution will likely increase public awareness of rare diseases and the challenges faced by individuals and families affected by them. It may also encourage further research and development of treatments for these conditions. The resolution serves as a symbolic gesture of support from the Senate.
Potential Benefits
- Increased awareness of rare diseases among the general public.
- Potential for increased funding and support for research into rare disease treatments and cures.
- Encouragement for early and accurate diagnosis of rare diseases.
- Recognition and validation for individuals and families affected by rare diseases.
- Promotion of collaboration among researchers, healthcare providers, and patient advocacy groups.
Potential Disadvantages
- The resolution itself does not allocate any specific funding or resources to address rare diseases.
- The impact may be limited to awareness-raising without concrete action.
- It does not directly address the high cost of treatments for rare diseases.
- The resolution is symbolic and may not lead to significant policy changes.
- There is no guarantee that increased awareness will translate into improved access to care or better outcomes for patients.
Constitutional Alignment
The resolution aligns with the general welfare clause of the US Constitution, as it promotes awareness and research related to public health. Designating a "Rare Disease Day" falls within the legislative powers granted to Congress under Article I, Section 8, which allows Congress to provide for the general welfare of the United States. The resolution does not infringe upon any specific rights or liberties protected by the Constitution or its amendments.
Impact Assessment: Things You Care About ⓘ
This action has been evaluated across 19 key areas that matter to you. Scores range from 1 (highly disadvantageous) to 5 (highly beneficial).